Session B: Effectively Presenting Information to Facilitate High-Quality Decision-Making
Panelists list
Moderator: Christine Grady, R.N., Ph.D., F.A.A.N.
National Institutes of Health Clinical Center
Dr. Christine Grady is chief of the Department of Bioethics at the National Institutes of Health Clinical Center. Her research focuses on the ethics of clinical research, especially subject recruitment, incentives, vulnerability, informed consent, and international research ethics. She was a member of the Presidential Commission for the Study of Bioethical Issues, senior research fellow at the Kennedy Institute of Ethics, and an elected fellow at the American Academy of Nursing and at the Hastings Center. Dr. Grady has authored more than 125 papers, authored or edited several books, and has lectured widely on ethical issues in clinical research and clinical care, HIV disease, and nursing. She is a leader of the Bioethics Consultation Service, Institutional Review Board (IRB) and Data Safety Monitoring Board (DSMN) member, and member of several editorial boards. She holds a B.S. in nursing and biology from Georgetown University, a M.S.N. in community health nursing from Boston College, and a Ph.D. in philosophy from Georgetown.
Angela Fagerlin, Ph.D.
University of Utah
Dr. Angie Fagerlin is a professor and chair of the Department of Population Health Sciences at the University of Utah and a Research Scientist at the Salt Lake City Veterans Affairs office. Her training is in experimental psychology, primarily in the areas of cognitive and social psychology. Dr. Fagerlin's research focuses on testing methods for communicating medical data to patients and providers—such as the risks and benefits of cancer treatment—and the development and testing of decision support interventions. Her recent work involves testing the impact of patient decision aids on patient-physician communication, and she is also currently testing multiple methods for communicating about genetic testing and infectious diseases such as the Zika virus, Ebola, and influenza. Dr. Fagerlin’s research has been funded by the VA, NCI, NIH, and the European Union.
Lisa Schwartz, M.D., M.S
The Dartmouth Institute for Health Policy and Clinical Practice, Dartmouth Medical School
Steven Woloshin, M.D., M.S.
The Dartmouth Institute for Health Policy and Clinical Practice, Dartmouth Medical School
Drs. Lisa M. Schwartz, M.D., M.S., and Steven Woloshin, M.D., M.S., are professors of Medicine and Community and Family Medicine at the Geisel School of Medicine at Dartmouth, as well as co-directors of the Center for Medicine and the Media at the Dartmouth Institute for Health Policy and Clinical Practice. Together, they have worked to improve how medical evidence is communicated to physicians, journalists, and the public, with a focus on prescription drugs and screenings. Drs. Schwartz and Woloshin have co-authored two books, Know Your Chances: Understanding Health Statistics and Overdiagnosed: Making People Sick in the Pursuit of Health, and their essays have appeared in the New York Times and Washington Post.
John Wilbanks
Sage Bionetworks
John Wilbanks is the Chief Commons Officer at Sage Bionetworks. He previously worked as a legislative aide to former California Congressman Fortney “Pete” Stark and served as the first assistant director of Harvard University’s Berkman Center for Internet & Society. He founded and led the acquisition of bioinformatics company Incellico, Inc., and was executive director of the Science Commons project at Creative Commons. In February 2013, in response to a “We the People” petition spearheaded by Wilbanks and signed by 65,000 people, the U.S. government announced a plan to open taxpayer-funded research data and make it freely available. He holds a B.A. in philosophy from Tulane University and studied modern letters at the Sorbonne University in France.
Megan Doerr, M.S., C.G.C.
Sage Bionetworks
Meg Doerr is Principal Scientist at Sage Bionetworks. A former botanist and middle school teacher, she joined the genetic counseling community in 2006. She previously led the clinical development and implementation of Cleveland Clinic's family history and risk assessment tool before joining the Governance team at Sage Bionetworks in 2015. At Sage, Ms. Doerr’s efforts concentrate on supporting innovative, participant-centric approaches in open science. Her work has a strong focus on app-based research, including the ethical, legal, and social implication (ELSI) issues associated with informed consent, research participation, and data sharing for secondary use in entirely remote, mobile platform-based research studies, including for the All of Us research program.
