The center coordinates a collaborative national infrastructure of regional hemophilia networks to promote and improve comprehensive, quality care of individuals with hemophilia and related bleeding or clotting disorders such as thrombophilia. Other key goals are: strengthen the capacity of the Regional Hemophilia Network (RHN) and the hemophilia treatment centers’ (HTC) integrated care teams; increase the evidence base of care for patients with hemophilia and related blood or clotting disorders; and track national, regional, and patient-level data to assess patient and health outcomes.
Keywords: hemophilia
